Living with arfid: my experience

I remember growing up, even before I realized something might be ‘wrong’ with me, feeling like I was different. I had difficulty making friends and had little interest in eating the foods most other children liked. As I got older, these feelings of being alone, disconnected from others and terrified of food only grew stronger.

When it first came to light that I might have a condition called ARFID – Avoidant/Restrictive Food Intake Disorder - I was relieved to finally have some answers and validation for the issues I had been struggling with my whole life. Knowing what it was did not change how hard every day could be – meal times were always incredibly challenging.

I never understood why people would try to push me out of my comfort zone when it came to food because trying new things scared me more than anything else. It wasn’t until later in life I started actively trying to find ways to reduce fear around meals and trying new foods that weren’t part of my existing routine before.

At first, it was baby steps; I’d look at recipes online and make small changes to dishes that were already part of my diet over time. Now, while sticking mainly within the security blanket of familiar foods is still important for me, if someone offers me something new or suggests a meal out then now I can usually accept without shaking with nerves in anticipation of fear-inducing foods being thrown at me!

Living with ARFID has been difficult but learning that having difficulty with food isn’t uncommon gives me hope that one day soon maybe those terrifying meals won’t seem so intimidating anymore!


Hey, it’s great that you were able to put a name to what you’ve been struggling with all these years. It’s a relief to finally have some answers, right? I totally get what you mean about feeling different and having a hard time with food. It takes a lot of courage to start making changes and trying new things, even if they’re small. I’m glad to hear that you’ve been able to make progress in facing your fears around meals and trying new foods. It’s a big step forward! Just remember, it’s okay to take it at your own pace and stick to what feels safe for you. And it’s awesome that you’re starting to feel a bit more hopeful about the future. Keep going, you’re doing great!

Hey, I totally get where you’re coming from. I’m around the same age and have been dealing with ARFID too. It’s tough feeling different and struggling with something that seems so simple for everyone else. But it’s great that you’ve been making progress with trying new foods, even if it’s just small changes. It shows a lot of strength and determination. And you’re right, knowing that others are going through the same thing can be really comforting. Keep at it, and hopefully one day those intimidating meals won’t seem so scary anymore. You’ve got this!

Hey, I can totally relate to what you’re going through. It’s tough feeling like you’re different and having those fears around food. But I’m really glad to hear that you’ve been working on finding ways to reduce that fear and try new things. It’s definitely not easy, but every small step counts, right? And it’s totally okay to stick to familiar foods - they’re our comfort zone for a reason. I think it’s amazing that you’ve been able to accept new foods and meals out without those overwhelming nerves. Keep going, and know that there are others out there who understand and support you. We’re all in this together, and I truly believe that things will get easier for us. Hang in there!

Hey, I can totally relate to what you’re going through. I’ve struggled with ARFID for most of my life too, and it’s been a real challenge. But hearing your story gives me hope that things can get better. It’s so tough feeling different and disconnected, but finding out about ARFID was a huge relief for me too. It’s great to hear that you’ve been able to make progress with trying new foods, even if it’s just baby steps. I’m still working on that myself, but it’s encouraging to know that it’s possible. Keep pushing yourself, and remember that it’s okay to take things at your own pace. We’re all in this together, and I’m rooting for you. Hang in there!